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Mercies in Disguise: A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them, by Gina Kolata
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About the Author
GINA KOLATA (M.A.) is a writer and medical reporter for The New York Times. She has written several books and edited multiple collections of popular science writing. Ms. Kolata lives with her husband in Princeton, New Jersey.
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Product details
Paperback: 272 pages
Publisher: St. Martin's Griffin; Reprint edition (April 3, 2018)
Language: English
ISBN-10: 9781250064448
ISBN-13: 978-1250064448
ASIN: 1250064449
Product Dimensions:
5.1 x 0.7 x 8 inches
Shipping Weight: 8 ounces (View shipping rates and policies)
Average Customer Review:
4.5 out of 5 stars
41 customer reviews
Amazon Best Sellers Rank:
#413,200 in Books (See Top 100 in Books)
A compelling story of courage and resilience told masterfully by an incredibly gifted writer with great insight into the human condition. This is an inspirational story about normal people, who when faced with a horrible fate showed that they could rise above it and show us what genuine heroism really is. While it deals with a complex disease, the writer carefully explains its aspects in language that most anyone can understand and appreciate.
I read about this book in our Sunday paper and ordered it after reading an excerpt included in the article. I found the book fascinating. Interesting mix of science and human interest. If You don't care about the science, you can skip those chapters and still be captivated by the story.
A spellbinding story of a family caught in the web of a fatal genetic disease. Well written and intentional in content. It made me thankful my children do not have to have their lives suspended like Amanda's family does.
A fantastic telling of a horrible story and a horrible disease. It takes real guts to share this experience and Gina does a great job of weaving the narrative in a way that keeps you reading. It was hard to put down.
Absolutely one of the most inspiring biographies I ever read. Right in my hometown.
Always knew I was living a dream And then I read this. It makes me even more grateful and aware of good health.
If I could rate this book a 10, I would. This is honestly the best book I have read in quite sometime. It is an incredibly personal and honest look into a family's life dealing with a devastating and terminal hereditary disease that few doctors know anything about. And how their journey has led them to do anything and everything they can to fight back, no matter how diffult or controversial it may be.
I enjoyed this book vey much it was a quick read and was of interest to me as a former Medical Lab tech.It is the story of how a genetic anomaly passed on for many generations affected a small town family in the South.It is also the struggle of how one young woman dealt with this disease .A very good and absorbing medical mystery.
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